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with severe behavioral challenges who present moment to moment risk to themselves and others," according to Autism New Jersey Executive Director Suzanne Buchanan.Įast Brunswick native Ari Ne'eman, president of the Autistic Self Advocacy Network, said he thought the plan did an "excellent" job putting New Jersey on a path toward inclusion after earning t he dubious distinction of operating more institutions than any other state. "Every restriction that you incorporate into your regulations takes away the rights of New Jersey citizens."Īutism Speaks and Autism New Jersey, high-profile national and state organizations, also offered testimony urging the state to collaborate with families.įlexibility is essential for the "small but important segment of the autism community.
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"Her day would become a mash-up of moving from one place to another without purpose," Migton said.
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Her daughter is happy and productive at her workshop job, but the government would no longer fund it because she would need to spend three-quarters of her day out in the community. Joan Migton of Clark noted the Americans with Disabilities Act "was supposed to insure that people with disabilities have the same rights, freedoms and choices as people without disabilities" but the state and federal government want to dictate where people like her 31-year-old daughter ought to live and work. Nor would the state allow Medicaid funds to pay for recreational, vocational and job programs unless clients are spending at least three-quarters of their day working or socializing outside a facility for disabled people. The state also would no longer subsidize housing that is part of a campus, a farm, or a facility where vocational programs are also provided, according to the plan. To boost the number of available apartments, the state would pay for the installation of fire-suppression systems, transportation expenses and housing subsidies, according to the 35-page document. It encourages people to lease their own apartments, but only in buildings where no more than 25 percent of the tenants have a disability. Under New Jersey's Home and Community Based Services "transition plan," the state would permit group homes that serve no more than four people, or six if special circumstances warranted it. Nearly all of the 40 people allowed to testify during the two-hour session - some through tears, others through gritted teeth and sarcasm - urged the state officials to try again. The second and final hearing on New Jersey's "transition plan" to shift more state and federal Medicaid funding to community housing and employment drew about 250 people. "You are trying to create one model for everyone, and it will not work," she said.
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Jacob lives at a Bancroft facility in south Jersey that employs highly educated and trained professionals who know how to care of him, White said. "He was pepper-sprayed and arrested when he was in a group home." He's self-injurious - he'll explode and bang his head, or bite himself," White told a panel of state Human Services officials Thursday at a hearing on a plan that proposes major changes to the way the government pays for services for people with developmental disabilities.